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Fibromyalgia Symptoms No One Sees: My Daily Reality and the Small Wins That Keep Me Going

Fibromyalgia Symptoms No One Sees: My Daily Reality and the Small Wins That Keep Me Going

Picture of Margaret “Mags” Whitcombe

Margaret “Mags” Whitcombe

Fibromyalgia Symptoms No One Sees: My Daily Reality and the Small Wins That Keep Me Going

Women over 50, like me, often find themselves wrestling with hormonal shifts, aging muscles, thinning collagen, and the cumulative stress of decades of caregiving, on top of fibromyalgia’s demands. 

Research shows fibromyalgia disproportionately affects women and often coexists with mood disorders or connective tissue issues, painting a complicated health picture that can’t be captured by a single lab result.

Here’s what makes fibromyalgia so maddening: it’s inconsistent. One morning, I can manage a load of laundry, prep dinner, and answer emails. The next, just getting out of bed feels like running a marathon barefoot on gravel. 

The energy levels rise and then drop when symptoms get worse. Doctors call this “boom-bust” or “overactivity-underactivity” cycling. It’s been really hard for me to learn how to pace myself, not just push and then fall apart. 

It isn’t laziness; it’s strategy. Activity pacing is a validated technique to smooth out those spikes and dips, helping people with chronic pain maintain steadier engagement in life.

Let’s explore fibromyalgia symptoms, my experience, the importance of ruling out look-alike disorders, and why no blood test or brain scan can confirm a diagnosis.

So What Exactly is Fibromyalgia? What’s Going On in Our Bodies?

What is Fibromyalgia?

Fibromyalgia is officially diagnosed when someone has widespread pain for more than three months and no other condition can explain it. That sounds straightforward until you realize how many illnesses can mimic those same aches, how often scans come back clean, and how many people are told the pain is “in their head.”

While the precise cause of fibromyalgia is still elusive, scientists agree on central sensitization: the nervous system becomes hypersensitive, amplifying pain, light, noise, and even odors. 

The pathways that should filter and dampen pain signals misfire. Neurotransmitter imbalances, altered pain modulation, and disrupted sleep all layer together, worsening symptoms. 

It’s rarely “just pain.” It’s pain plus fatigue, brain fog, sleep disturbances, tingling or numbness (paresthesia), anxiety, depression, and sometimes irritable bowel or bladder issues.

Diagnosis Fibromyalgia isn’t About Proving Pain; It’s About Recognizing Patterns

Diagnosis Fibromyalgia

Your pain is real. 

People living with fibromyalgia often appear “fine” on the outside. There are no casts, no swelling, no dramatic lab numbers to point at. As a result, they are always having to defend things that can’t be seen. This is a never-ending cycle of proving pain.  

Doctors now use the WPI (0–19 body parts) and SS scale (0–12) to quantify what’s happening. Persistent, widespread pain for at least three months is the cornerstone. 

A key part of a fibromyalgia diagnosis is eliminating other explanations. Doctors may order blood work or imaging to check for anemia, thyroid disorders like hypothyroidism, autoimmune conditions such as lupus, vitamin B12 deficiency, diabetes, or kidney and liver disease. 

Another common confusion: myofascial pain syndrome, which is focused on one area or muscle group. Pressing on the muscle reproduces the pain, and posture problems or overuse can also spark it. When left untreated, persistent myofascial pain can sensitize the nervous system and start to look like a mild form of fibromyalgia. 

Many patients actually have both conditions, which further complicates the diagnosis of fibromyalgia.

I wish I could say there’s a magic pill. There isn’t. Treatment works best when it’s comprehensive and personalized.

Evidence supports a multidisciplinary approach: education (knowing the why truly matters), gentle physical activity, behavioral therapies, sleep support, and, when needed, medications that calm the nervous system’s overactive alarm. 

Central Sensitization: When Touch Hurts More Than It Should

During a physical exam, people with fibromyalgia usually don’t show signs of tissue damage, inflammation, or nerve root compression. What we may find instead are clues that the central nervous system is over-amplifying signals. 

It is possible for a light touch to cause pain. This is known as allodynia. It’s called hyperalgesia when a tiny poke can hurt unbearably. These signs don’t show up in everyone, especially at the beginning. 

For people with advanced cases, a light touch might not be felt at all (hypoesthesia) and a sharp stimulus might not be felt at all (hypoalgesia). 

These strange sensory experiences can’t be easily linked to a single nerve. This means that the brain, not a squished nerve, is causing the problem.

What Are The Common Fibromyalgia Symptoms?

Diagnosis Fibromyalgia symptoms

1. Core trio: persistent, widespread musculoskeletal pain (both sides of the body, above and below the waist), profound fatigue that rest doesn’t fix, and unrefreshing or disrupted sleep. 

2. Heightened sensitivity and stiffness: pain can feel sharper than it “should” (allodynia, hyperalgesia), along with muscle stiffness and tenderness. Many people are also more sensitive to touch, temperature, noise, or light.

3. Cognitive problems (“fibro fog”): trouble concentrating, slowed thinking, memory lapses, and difficulty multitasking. 

4. Mood and mental health changes: depression, anxiety, irritability, and emotional distress frequently accompany the physical symptoms.

5. Other common complaints: headaches or migraines, irritable bowel syndrome (IBS) and other digestive upsets, tingling or numbness, jaw/TMJ pain, restless legs, pelvic or bladder discomfort.

6. Fluctuating symptoms: intensity often rises and falls—“flare” days and “better” days are typical. 

If these symptoms sound familiar, speak with a healthcare professional for an evaluation and personalized plan. This isn’t medical advice.

Why Symptoms Fluctuate: Good Days, Bad Days, and Everything Between

You’re not imagining it if your pain and fatigue seem to fluctuate without a clear reason. The brain constantly modulates sensory input. 

Stress levels, sleep quality, hormonal shifts, physical exertion, and emotional triggers can all tweak how loudly that internal alarm wails. 

This ebb and flow confuses loved ones (“You seemed fine yesterday”) and even patients (“Am I really sick if I had a decent morning?”). The fluctuation is a feature of fibromyalgia, not a contradiction. 

That’s one reason why it can take time and patience on both sides of the exam table to get a correct diagnosis of fibromyalgia.

How to Deal with Fibromyalgia Pain

Ways to Deal with Fibromyalgia Pain

Exercise can change the game

When done right, exercise can also help. Aerobic exercise and resistance training are good for your mood, muscle strength, and joint stability.

However, randomized trials have shown that practices like tai chi improve symptoms more than traditional exercise. The key is to build slowly, steadily, and nicely, not to push past the red line.

Sleep remains one of my biggest battles. 

I can collapse into bed and still wake up feeling like I never touched a pillow. Pain gets worse when you don’t get enough sleep, and sleep problems make pain worse.

That spiral can be stopped by sticking to a regular bedtime routine, limiting screen time at night, doing gentle stretching, and, if needed, taking sleep-aid medications. These changes may not seem like much, but for someone with fibromyalgia, they are very important. 

READ ALSO: 10 Tips For Better Sleep When You Are Over 50

Nutrition isn’t a magic bullet, but it can help. 

Keeping your blood sugar level steady, eating anti-inflammatory foods like fish and colorful vegetables, staying hydrated, and avoiding your own personal triggers. 

For example, some people experience symptom spikes when they eat too much caffeine, ultra-processed foods, or alcohol, which can make flare-ups less severe. 

Research continues to explore gut–brain links and how microbiome shifts might influence central sensitization. It’s an evolving area, so staying informed and checking credible sources matters. 

Support is medicine, too. 

When people who care about you believe in you, when your kids do chores without being asked, and when your partner notices how hard you work even on “low” days, those are the times when you feel full again. 

Fibromyalgia asks families to measure contributions differently, celebrate quieter victories, and let go of the myth that productivity equals worth. Emotional validation reduces stress, and lower stress often means fewer flares.

Ways to Cope With Fibromyalgia

Here’s what helps me get through:

Naming your limits without apologizing

That’s not defeat; it’s wisdom earned in pain. Every “no” protects a future “yes.” Learning to say, “I can do this, but I’ll need help with that,” took practice. Now, it’s part of my health plan, not a moral failing.

Micro-goals instead of mile-long to-do lists. 

On a flare day, “shower and stretch for five minutes” is a win. On a better day, I might map out a gentle walk in the morning and a rest break afterward. The boom-bust roller coaster doesn’t throw me around when I plan, do, and pause.

Gentle exercises are non-negotiable. 

Not the “no pain, no gain” kind of push, but the “move to soothe” kind of activity. Tai chi, light resistance bands, or water aerobics let me strengthen without aggravating. Momentum, even slow, is easier to keep than to restart.

READ ALSO: 7-Day Ultra Gentle Recovery Exercise to Bounce Back Quickly After Being Sick

Mental health care

Therapy gave me language to voice the guilt, anger, sadness, and fear. Cognitive behavioral therapy and mindfulness practices can help you change the way you think about your pain, not to hide it, but to make the mental pain that comes with it less severe. Taking care of one part of the mind affects the other part.

Tracking patterns

Flares often have signs, like not getting enough sleep, having a fight, eating certain foods, or the weather changing. Keeping a simple journal (no need to be perfect) helps me prepare for and lessen the effects. Being knowledgeable gives you power, and in this case, it also makes you gentle. 

Most of all, I’m done proving my pain. Fibromyalgia may not show up on an X-ray, but it reshapes lives. 

The most important thing for healing is to believe in ourselves and demand that others believe us. We have to change how we think about strength because of this condition. It’s not about how much we can handle without help, but about how bravely we adapt, talk to each other, andeek joy in the cracks.

No, There’s Still No Definitive Test

As of now, there is no blood test, MRI, PET scan, or other smart biomarker that can say for sure, “Yes, fibromyalgia.” Researchers are still looking into it, and one day we might have a neural signature that proves what the body feels. 

For now, fibromyalgia is still only diagnosed through a careful exam, your story, and being sure that no other conditions are present.

A Final Word to My Fellow Women Over 50 Living This Reality

You’re not imagining things, and you’re not weak. You’re not failing because your energy isn’t what it was at 30. Always keep in mind that you’re living with a complex neurological condition that demands smart strategies and deep self-respect. 

Speak up. Ask for better care. Stay curious about new research. Adjust the day when your body whispers “slow down,” and celebrate the afternoons you catch a glimpse of your old energy. Those small victories are significant and meaningful. These little wins are how we reclaim our lives, inch by inch and breath by breath.

If you love someone who’s walking this road, believe them. Offer help without strings. Always keep in mind that things can change at the last minute. 

Fibromyalgia has its own clock and its own weather patterns. Being compassionate doesn’t heal, but it does make the journey easier.

Pain may be invisible, but we are not. Every day that we show up with kindness, a plan, and unwavering hope, we get something back. Small wins add up. And that’s what keeps me going. 

This article is for informational purposes and is not a substitute for professional medical advice. Always consult with your healthcare provider about diagnosis and treatment options that are right for you.

The Author

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About me

Schellea Fowler, the visionary founder of Fabulous50s, brings over three decades of leadership and expertise in small business to her legacy. Not only has she achieved personal success, but she has also become a mentor, generously sharing her extensive experience with emerging entrepreneurs.

After retiring at 50 in 2016, Schellea’s passion for continuous growth led her to pursue further qualifications, becoming a certified fitness instructor and personal trainer specializing in exercise and brain health for older adults. Through Fabulous50s, Schellea continues her mission of inspiring women to embrace and celebrate every phase of life with confidence and vitality.

Her diverse qualifications reflect her commitment to holistic well-being, including a Neuro Athletics Coaching Certificate (NACC) from Neuro Athletics, Meditation Teacher Training from Yoga Coach, Fashion Styling certification from the Australian Style Institute, and Advanced Personal Colour Analysis from AOPI.

wellness expertise Schellea Fowler

In addition to her wellness expertise, Schellea is also a certified business and life coach, equipping her to empower women not only in health and fitness but also in their personal and professional growth.

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Fibromyalgia Symptoms No One Sees: My Daily Reality and the Small Wins That Keep Me Going
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